Al has Parkinson’s and he started using a two-wavelength Duo Coronet in July last year, once daily in the morning.
I had an email from Al the other day, and I have his permission to quote his very interesting comments.
‘If I miss a day session, there is a gradual change in me. Bad dreams come back, my tolerance level goes way down and my lethargy goes way up.’
Continue reading “Three days”
I can understand the skepticism about the biological effect of red lights, because that’s where I started from. It seemed too good to be true. However, there is a wealth of excellent quality research out there, and the evidence is compelling that red and near infrared lights protect existing neurones, and can stimulate new neurones to be created, stimulate blood vessels to increase connections- neuroprotection, neurogenesis and angiogenesis.
Continue reading “It really does work…”
I wrote the following for someone interested in the effects of red and near infrared lights in Parkinson’s Disease. It is a summary of PD-related redlightsonthebrain blog posts.
Research findings blog posts are:
1. A summary of the findings of the people with PD using bucket light hats published in a peer reviewed journal.
2. A summary of a 2016 presentation given by Prof John Mitrofanis, an international leader in research on red lights and PD.
Interesting anecdotal blog posts are:
1. On sleep
2. On the subtlety of the effects of transcranial red and near infrared lights
Trans-cranial red light can improve REM or dream sleep disruption in people with Parkinson’s Disease.
For spouses of people with Parkinson’s, the above quote can be a threat.
We have a protective mechanism that stops the body moving during dream or REM sleep. So while you are dreaming about running away from an enraged grizzly bear, your body is still.
One of the many awful things about Parkinson’s is that can disrupt this protective mechanism during dream sleep. This means that when the grizzly bear is chasing, your body is no longer still. You are running as fast as you can while lying in bed.
If your spouse is lying next to you, it is like war has broken out. Your frantic running from the grizzly bear results in an eruption of kicking and thrashing. You are fast asleep but your spouse has had a rude awakening.
Daily light hat use can stop warfare during dream sleep.
There has been a steady increase in the number of spouses reporting that the outbreaks of war have stopped following daily use of red light. As well, the person with Parkinson’s feels that sleep is of a better quality.
Deep Brain Stimulation (DBS)
One of the reports came from a chap who had the DBS procedure. He was initially apprehensive about using an Eliza because of his DBS, but there is no good scientific reason to suspect that there would be any adverse reaction.
His dream sleep has resumed being peaceful, and he is much happier with improved sleep. And so is his wife.
One of the problems of writing a blog, I’m finding, is that people are keen to share good news, but they are not so keen to share not so good news, or even no news. I’m guessing that there are people out there who can relate to this.
Let’s say that you have Parkinson’s, you have made yourself a light hat, and you have been wearing it every day for 20-30 minutes. You have a lot of hope.
A month down the track and nothing seems to have changed. You are feeling a bit fed up with the red light caper, and sick of the jokes that others make about it.
Another month goes past and you are sure that you’ve had no response from the lights. Are the red lights a load of hooey? Continue reading “The light hat isn’t helping my PD…”
We have had multiple separate reports about sleep improvements (usually from spouses) and there is an exciting consistency in these reports.
We are getting more reports about improvement in sleep for people with Parkinson’s Disease using red lights on a daily basis.
One Eliza-user has given permission for me to quote his wife’s description:
“I have noticed a vast improvement in his sleep. Prior to him starting the light therapy, he was having very restless sleep at night. He was suffering insomnia and he often lashed out in very jerky uncontrolled movements during sleep. He now sleeps very soundly and the sudden uncontrolled movements have stopped completely. As a result he has more energy during the day.
We are particularly thrilled about his improved sleep as this not only impacted on him but also on me. His medication has not changed at all.”
REM sleep disorder is a well-known part of the Parkinson’s Disease progression; it is very disruptive and distressing for the individual and partner. It seems that the red lights have an effect on REM sleep, and somehow sooth it.
We have had multiple separate reports about sleep improvements (usually from spouses) and there is an exciting consistency in these reports. A soothing sleep is good for all.