Trans-cranial red light can improve REM or dream sleep disruption in people with Parkinson’s Disease.
For spouses of people with Parkinson’s, the above quote can be a threat.
We have a protective mechanism that stops the body moving during dream or REM sleep. So while you are dreaming about running away from an enraged grizzly bear, your body is still.
One of the many awful things about Parkinson’s is that can disrupt this protective mechanism during dream sleep. This means that when the grizzly bear is chasing, your body is no longer still. You are running as fast as you can while lying in bed.
If your spouse is lying next to you, it is like war has broken out. Your frantic running from the grizzly bear results in an eruption of kicking and thrashing. You are fast asleep but your spouse has had a rude awakening.
Daily light hat use can stop warfare during dream sleep.
There has been a steady increase in the number of spouses reporting that the outbreaks of war have stopped following daily use of red light. As well, the person with Parkinson’s feels that sleep is of a better quality.
Deep Brain Stimulation (DBS)
One of the reports came from a chap who had the DBS procedure. He was initially apprehensive about using an Eliza because of his DBS, but there is no good scientific reason to suspect that there would be any adverse reaction.
His dream sleep has resumed being peaceful, and he is much happier with improved sleep. And so is his wife.
Prof John’s presentation at the recent Melbourne conference covered two areas:
- the development of the research into red &near infrared light and Parkinson’s disease; and
- the results of recent case-studies of four Tasmanians using Eliza light hats.
I’m not able to post the exact presentation he gave a few weeks ago, but I am able to give you detailed notes that I took on 6 December 2016, when Prof John spoke to the group of people involved in the Eliza activities in Tasmania. These notes cover point (1) above.
The information Prof John covered in point (2) has been accepted for publication in a peer-reviewed journal, and when that article appears, I’ll be able to post it on the blog. That might not be for a few months, so keep watch on the blog. Continue reading “Prof John Mitrofanis presentation”
This is a wonderfully written description of the difficulties that Parkinson’s disease can present. It can be debilitating, sneaky, and extremely hard to diagnose with certainty.
This story, from The Sydney Morning Herald/The Age describes the confusing symptoms of the early years, the procession of varying medical opinions and, too familiar to many, the sheer misery PD can inflict.
One of the problems of writing a blog, I’m finding, is that people are keen to share good news, but they are not so keen to share not so good news, or even no news. I’m guessing that there are people out there who can relate to this.
Let’s say that you have Parkinson’s, you have made yourself a light hat, and you have been wearing it every day for 20-30 minutes. You have a lot of hope.
A month down the track and nothing seems to have changed. You are feeling a bit fed up with the red light caper, and sick of the jokes that others make about it.
Another month goes past and you are sure that you’ve had no response from the lights. Are the red lights a load of hooey? Continue reading “The light hat isn’t helping my PD…”
I’ve been reading an interesting 2016 review article called Cytokine networks in neuroinflammation.*
Click here for the abstract.
Some of the differences between neuroinflammation and neurodegeneration are beautifully explained. Both diagrams come from this article.
Cells in our body and brain produce cytokines, small proteins that are powerful and wilful little beasties. They provide a very effective means of cell communication, and can “orchestrate complex multicellular behaviour”.
Over 300 different cytokines have been identified, but some of them have shown that in one situation they will behave in one way, but in another situation the same cytokine will do the complete opposite.
Cytokines are part of the body and brain’s response to something going wrong. But cytokines themselves can go haywire (called cytokine network dysfunction or dysregulation) and set up and maintain cascades of activity that can ultimately cause harm to the tissue.
Continue reading “Neuroinflammation vs Neurodegeneration”
If you live close to Melbourne, you have a rare opportunity to hear two excellent lectures about the effects of red light on the head* for Parkinson’s and Alzheimer’s Disease.
Who are the speakers:
Prof John Mitrofanis, University of Sydney and Prof Liisa Laakso, Griffith University
What are they talking about:
Prof John is giving an update on case studies of people with Parkinson’s Disease using red light hats on a daily basis.
Prof Liisa is presenting recent research evidence on the effects of red light in Parkinson’s and Alzheimer’s disease.
Sunday 1st July, 2018
9.00 – 9.45 am – Prof Liisa
9.45 -10.30 am – Prof John
Workshop 1 & 2,
The Larwill Studio, Art Series Hotels, 48 Flemington Road, Parkville, Vic 3052. Map
These two lectures are free to the public, but you will need to book as numbers are limited.
Book your seat:
These two public presentations have been coordinated by the Australian Medical Laser Association, AMLA, and is part of a two day conference called Photobiomodulation Therapy.
*The official term for red light on the head is PBMt, shorthand for trans-cranial photobiomodulation.
We have had multiple separate reports about sleep improvements (usually from spouses) and there is an exciting consistency in these reports.
We are getting more reports about improvement in sleep for people with Parkinson’s Disease using red lights on a daily basis.
One Eliza-user has given permission for me to quote his wife’s description:
“I have noticed a vast improvement in his sleep. Prior to him starting the light therapy, he was having very restless sleep at night. He was suffering insomnia and he often lashed out in very jerky uncontrolled movements during sleep. He now sleeps very soundly and the sudden uncontrolled movements have stopped completely. As a result he has more energy during the day.
We are particularly thrilled about his improved sleep as this not only impacted on him but also on me. His medication has not changed at all.”
REM sleep disorder is a well-known part of the Parkinson’s Disease progression; it is very disruptive and distressing for the individual and partner. It seems that the red lights have an effect on REM sleep, and somehow sooth it.
We have had multiple separate reports about sleep improvements (usually from spouses) and there is an exciting consistency in these reports. A soothing sleep is good for all.