A not-for-profit association

We have registered a not-for-profit association. We have some more administrative things to do to get it all ready for action, but it is underway.

Our aim is for this association to:

  • develop and manufacture effective and low-cost light devices
  • make the devices available for purchase through the association
  • put all profits and donations into medical research –  randomised case studies are the gold standard, but they are expensive things to run.

Initially all the light devices (including Elizas) we make will be given away through the association. Currently we give them away on a personal basis, but very soon, the light devices we make will be a gift of the association.

We are currently working on different models of light hats, and when we think we have identified the best we can do, we will seek funding for the development of a light hat that looks, um, civilised. Eliza bucket hats have been a great way to prototype our ideas and adapt findings from ongoing research, but they are not aesthetically pleasing…

One wavelength Eliza photo

This is an early model of a one-wavelength Eliza. You can see that it refuses to lose its inner bucketness.

The elastic strap helps hold the Eliza on the head, with the back tilted back onto the base of the skull and the front just above eyebrow levels. It doesn't matter if the red light gets into the eyes. I find it more comfortable to be able read or watch television while wearing an Eliza.

Despite its less than-magnificent-appearance, it gives a good spread of light around the head, and the foil insert reflects the lights a little. It all helps.

The instructions for making one of these are being completed. There is a list of what you will need already posted.

Parkinson’s symptoms & Lights

Over the last two years we have made, for people with Parkinson’s, a number of Eliza light hats, both one and two wavelength. I’ve been musing on what they and we have been noticing. Bear in mind that each person is different, experiencing symptoms in different ways.

We have seen improvements in everyone who uses the lights daily.

The person least likely to notice any improvements is the person with Parkinson’s

Continue reading “Parkinson’s symptoms & Lights”

DIY Red Light Hat – the things you need

  • Bucket
  • Small plastic lid
  • Small piece of rigid plastic
  • DC 12v power plug connector/adaptor (female) for LED strips
  • LED strip connector
  • Red LED strip – 5 metre roll
  • Foil “fabric”
  • Aluminum multiseal tape
  • Small cable ties
  • Piece of sponge, 20cm x 20cm x ~1.cm depth. In inches, 8” x 8” x ½-¾ inch
  • 12 volt power plug, 1.5-2 amps.

Click here for more information about the things you need.

Tools

  • Sharp pointed knife
  • Sharp scissors
  • Small screwdrivers
  • Wire cutters can be useful

To come:

Instructions for making a one wavelength Eliza, a bucket red light hat are underway. They will be published as a document rather than as blog posts.

 

 

 

 

Parkinson’s – where is the problem?

The symptoms of Parkinson's Disease appear when the dopamine levels in the brain decline. Dopamine is produced in the brain in the Substantia Nigra, which is located deep in the brain, and is one of the parts of a bigger area called the "basal ganglia".

In Parkinson's, the cells of the Substantia Nigra lose power and their dopamine production slowly declines.

The images below show where the Substantia Nigra is located. The images are taken from different angles and collectively show just how deep inside the brain this area is.

Look for the light blue blob.

Looking at the brain from the front:

Looking at the brain from the side:

Looking at the brain from the top:

Looking at the brain from the back:

These images came from the app 3D Brain.

DIY Light Hat #3 – making holes

  1. Mark the bottom of the bucket. The larger dots around the perimeter will be ventilation holes, and the smaller dots (in the circles) to connect to a head piece inside the bucket. Eliza 3 holes 1

  2. Find a robust kitchen knife with a sharp pointed blade and start making the holes.I used to drill them, but I’ve found it is just as easy to carve the holes out with a knife.I hold the knife at right angles to the plastic and twist back and forth with pressure. The quality of the plastic of the buckets I’m using is not very good so it is very easy to split the plastic.The rotating movement reduces the splitting. But even if the plastic does split a bit, don’t worry – this is not a work of art and perfection is not the aim.Eliza 3 holes 2

You’ll need to turn the bucket over and work from the bottom as well as the top to get the holes through. Keep that knife rotating. 

If you have a very thick plastic bucket, use the drill to start the holes. You will still use a knife to adjust the size and clean up the edges. 


What you need to make an Eliza bucket light hat:

Click here. 

To come:

Instructions for making a one wavelength Eliza, a bucket red light hat are underway. They will be published as a document rather than as blog posts.