Another Eliza is born

Congratulations to the maker of this very fine Eliza!

It is heartening to hear of more Eliza light hats being made at home.

For those who are apprehensive, take heart. It can be done. If you aren’t in a position to do the fiddly stuff yourself, then you will almost certainly have a mate who is prepared to help. Just ask.

Windscreen shield – perfect for Eliza lining

Thanks to Trish and Toby for this brilliant find.

Autobarn have a windscreen sun shield for sale. The brand is Streetwise, it has silver on both sides, it is folded concertina-like around 600mm by 140mm and opens out, giving a good expanse of foil fabric to cut up.

It cost $5. Perfect!

Eliza the first – update

From the makers of the first Eliza

“tell timid people that if we at our ages can make one, 80 and 89, they can too.”


The stunning bucket comes from the Reject Shop. It was tougher plastic than the buckets I used from Chickenfeed Discount Store, and needed a hacksaw to do the final cut.

This Eliza is very very beautiful.

Max, eat your heart out!

Welcome to a new Eliza

The very first Eliza made from the blog instructions has been created in Cairns. She is a stunner, and is far more beautiful than any I have made. I am so chuffed.

I asked permission to post one of the photos of the new Eliza and here she is, showing the perfection of her innards.


Eliza’s outer is extremely fetching, too. The range of buckets available in Cairns is clearly superior to that on offer in Tasmania.

Record keeping #2

Some of you are planning to use a light hat, and want to keep good records.

The Eliza Diary is an excel spreadsheet and you can modify it to suit your purposes, but the main thing is to keep writing stuff in it. Even the smallest thing is worth mentioning, because you never know how useful that is.

Download the Eliza Diary  

Before you start

1. Eliza Diary 

Complete the baseline information. Take time to put in all the details, including comments from family and friends. Their observations are vital and they are most likely to see any changes first.

2. Handwriting

Find a notepad with lined pages, and keep this only for your handwriting samples.Write a long sentence or two in your normal handwriting. Write something that you are happy to write at regular intervals.

3. Video clip of you walking

A short video clip, showing you walking towards the camera, away from the camera and from side to side.

4. Video clip of you talking

Again, only a short clip is needed.

Regular reporting

1. Eliza Diary – every few days

Try to give updates every few days, and any time you or others notice any kind of change, please note it down straight away. All information is needed.

2. Handwriting sample and video clips – every month


The monthly writing samples will show if there is any change in your hand use, especially if you have the symptoms in your writing hand. Prof John has a neat piece of software that can analyse handwriting changes over time.

I know it is a pain and it is embarrassing to have videos of yourself being done, but the monthly video clips will help show subtle changes in:

  • Gait
  • Posture
  • Walking fluency
  • Facial animation
  • Articulation of words
  • Voice quality

These kinds of changes are really hard to pick on a day to day basis and they often only become evident if you keep these kinds of records.

If you are willing to share your records with Prof John, please let me know. At this stage all information is important as we are still at the beginning of understanding.

Your documentation of your own experience with lights is hugely valuable. You are part of citizen science at work.

There’s a hole in my bucket, dear Liza…

I’ve just updated the page on the evolution of the Eliza light hats. Now that it is public knowledge that Max was asked to be the first guinea pig, I can be a little more open with information and photos.

Over the first 12 months of Max’s use of light hats, I made him five different versions. I’m not sure he has ever had so much headwear!