We have registered a not-for-profit association. We have some more administrative things to do to get it all ready for action, but it is underway.
Our aim is for this association to:
- develop and manufacture effective and low-cost light devices
- make the devices available for purchase through the association
- put all profits and donations into medical research – randomised case studies are the gold standard, but they are expensive things to run.
We had hoped that all the light devices (including Elizas) could be gifted through the association, but if this is ever possible, it is a long way into the future.
We are currently working on different models of light hats, and when we think we have identified the best we can do, we will seek funding for the development of a light hat that looks, um, civilised. Eliza bucket hats have been a great way to prototype our ideas and adapt findings from ongoing research, but they are not aesthetically pleasing…
Please advise if help is needed in QLD, regarding the new association. I would like to be involved & help in any way possible.
Question re hat. My wife has PD & has also received DBS, with the hat, can I assume we should turn off the DBS, for the 20 mts of treatment.?
thank you
David Boyd, mobile 0419798990 & email davbomail@gmail.com
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Hello David, thank you for your offer of help. Every bit of assistance is needed! I would most definitely turn off the DBS, so as not to confuse things. Try a different timing regime, and do 20-30 minutes in the morning, and 10-15 minutes in the late afternoon evening. If you can only do it once a day, make sure it is in the morning when the neurones are rested and happy little vegemites. Cheers, Catherine.
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