I had a great query this morning about what baseline information to collect before you start using an Eliza. I have an excel spreadsheet which is basic, but a useful start, and it allows you to add comments over time. I will post it separately.
There are three very important things you can do to track any changes.
Before you start using the lights, do the following.
Find a notepad with lined pages, and keep this only for your handwriting samples.Write a long sentence or two in your normal handwriting. Write something that you are happy to write at regular intervals.
2. Video clip of you walking
A short video clip, showing you walking towards the camera, away from the camera and from side to side.
3. Video clip of you talking
Again, only a short clip is needed.
Can you schedule yourself to repeat these three things every month?
I know it is a pain and it is embarrassing to have videos of yourself being done, but the monthly video clips will help show subtle changes in:
- Walking fluency
- Facial animation
- Articulation of words
- Voice quality
The monthly writing samples will show if there is any change in your hand use, especially if you have the symptoms in your writing hand. Prof John has a neat piece of software that can analyse handwriting changes over time.
These kinds of changes are really hard to pick on a day to day basis and they often only become evident if you keep these kinds of records.
If you are willing to share your records with Prof John, please let me know. At this stage all information is important as we are still at the beginning of understanding. Hearing of your experience with lights and would be hugely valuable.
2 thoughts on “Record keeping”
Hello, Great post. We’d love to see your excel spreadsheet, Brian is a excel fan. 🙂
Hi Beth and Brian
Perfect timing as I uploaded it today. It is a useful basis for you to develop something that is relevant to you.