We have had multiple separate reports about sleep improvements (usually from spouses) and there is an exciting consistency in these reports.
We are getting more reports about improvement in sleep for people with Parkinson’s Disease using red lights on a daily basis.
One Eliza-user has given permission for me to quote his wife’s description:
“I have noticed a vast improvement in his sleep. Prior to him starting the light therapy, he was having very restless sleep at night. He was suffering insomnia and he often lashed out in very jerky uncontrolled movements during sleep. He now sleeps very soundly and the sudden uncontrolled movements have stopped completely. As a result he has more energy during the day.
We are particularly thrilled about his improved sleep as this not only impacted on him but also on me. His medication has not changed at all.”
REM sleep disorder is a well-known part of the Parkinson’s Disease progression; it is very disruptive and distressing for the individual and partner. It seems that the red lights have an effect on REM sleep, and somehow sooth it.
We have had multiple separate reports about sleep improvements (usually from spouses) and there is an exciting consistency in these reports. A soothing sleep is good for all.
A few people have asked how long a light hat should be worn.
A previous post about the Goldilocks Effect is really important to read, as it describes the research on the odd effect of too much red light.
More red light is not better – it can make things worse. Neurones are finicky fellows and we must respect this.
So how long should you wear an Eliza light hat, or any kind of red/near infrared light on the head? As everyone’s light hat is different, it is impossible to give absolutely firm advice. But based on what I’ve observed over the time of making many and varied light hats, I’d suggest the following considerations.
I’ve had a number of people tell me that conversations with their GP or specialist about red and near infrared lights haven’t gone well. One chap took his newly-made Eliza to show his neurologist, who roared with laughter and said that it would be very handy at Christmas.
I remember my reaction when patients brought in newspaper clippings about the latest and greatest cure for something – I’d keep a smile on my face and inwardly groan.
If you are getting less than supportive noises from your doctors, don’t get cranky with them, because they are trying to protect you. There are lots of charlatans and snake oil merchants out there, and people with chronic diseases are easy targets. They are worried that you and your family are going to be taken in by costly rubbish. If you read about the beginnings of my learning about red lights, here, you’ll see that I was also very skeptical.
So what can you do?
Continue reading “How to help your doctor”