We have had multiple separate reports about sleep improvements (usually from spouses) and there is an exciting consistency in these reports.
We are getting more reports about improvement in sleep for people with Parkinson’s Disease using red lights on a daily basis.
One Eliza-user has given permission for me to quote his wife’s description:
“I have noticed a vast improvement in his sleep. Prior to him starting the light therapy, he was having very restless sleep at night. He was suffering insomnia and he often lashed out in very jerky uncontrolled movements during sleep. He now sleeps very soundly and the sudden uncontrolled movements have stopped completely. As a result he has more energy during the day.
We are particularly thrilled about his improved sleep as this not only impacted on him but also on me. His medication has not changed at all.”
REM sleep disorder is a well-known part of the Parkinson’s Disease progression; it is very disruptive and distressing for the individual and partner. It seems that the red lights have an effect on REM sleep, and somehow sooth it.
We have had multiple separate reports about sleep improvements (usually from spouses) and there is an exciting consistency in these reports. A soothing sleep is good for all.
Red and near infrared lights are complex. We know only a little, but we do know about the importance of wavelengths, dose and comfort.
I’ve just added a new page – Caution .
Check it out as it collates some of the words of warning from various blog posts.
I’ve had a number of people tell me that conversations with their GP or specialist about red and near infrared lights haven’t gone well. One chap took his newly-made Eliza to show his neurologist, who roared with laughter and said that it would be very handy at Christmas.
I remember my reaction when patients brought in newspaper clippings about the latest and greatest cure for something – I’d keep a smile on my face and inwardly groan.
If you are getting less than supportive noises from your doctors, don’t get cranky with them, because they are trying to protect you. There are lots of charlatans and snake oil merchants out there, and people with chronic diseases are easy targets. They are worried that you and your family are going to be taken in by costly rubbish. If you read about the beginnings of my learning about red lights, here, you’ll see that I was also very skeptical.
So what can you do?
Continue reading “How to help your doctor”
From the makers of the first Eliza…
“tell timid people that if we at our ages can make one, 80 and 89, they can too.”
The stunning bucket comes from the Reject Shop. It was tougher plastic than the buckets I used from Chickenfeed Discount Store, and needed a hacksaw to do the final cut.
This Eliza is very very beautiful.
Max, eat your heart out!
The very first Eliza made from the blog instructions has been created in Cairns. She is a stunner, and is far more beautiful than any I have made. I am so chuffed.
I asked permission to post one of the photos of the new Eliza and here she is, showing the perfection of her innards.
Eliza’s outer is extremely fetching, too. The range of buckets available in Cairns is clearly superior to that on offer in Tasmania.
I’ve just updated the page on the evolution of the Eliza light hats. Now that it is public knowledge that Max was asked to be the first guinea pig, I can be a little more open with information and photos.
Over the first 12 months of Max’s use of light hats, I made him five different versions. I’m not sure he has ever had so much headwear!
An article in the Weekend Australian newspaper about red light and Parkinson’s Disease covers some of the people involved in the experiences described in this blog.
The article mentioned a home-made light hat. The instructions for making a one-wavelength version of the hat (aka Eliza) have been posted.
Instructions for a two-wavelength version of the light hat are in progress.
PS. If the link to the article takes you to a paywall, try searching for it using Google, using the search term ‘Suvi Weekend Australian’. I was able to access the full article this way.