Weekend Australian article

An article in the Weekend Australian newspaper about red light and Parkinson’s Disease covers some of the people involved in the experiences described in this blog.

The article mentioned a home-made light hat. The instructions for  making a one-wavelength version of the hat (aka Eliza) have been posted.

Instructions for a two-wavelength version of the light hat are in progress.

PS. If the link to the article takes you to a paywall, try searching for it using Google, using the search term ‘Suvi Weekend Australian’. I was able to access the full article this way.

A not-for-profit association

We have registered a not-for-profit association. We have some more administrative things to do to get it all ready for action, but it is underway.

Our aim is for this association to:

  • develop and manufacture effective and low-cost light devices
  • make the devices available for purchase through the association
  • put all profits and donations into medical research –  randomised case studies are the gold standard, but they are expensive things to run.

Initially all the light devices (including Elizas) we make will be given away through the association. Currently we give them away on a personal basis, but very soon, the light devices we make will be a gift of the association.

We are currently working on different models of light hats, and when we think we have identified the best we can do, we will seek funding for the development of a light hat that looks, um, civilised. Eliza bucket hats have been a great way to prototype our ideas and adapt findings from ongoing research, but they are not aesthetically pleasing…

Parkinson’s symptoms & Lights

Over the last two years we have made, for people with Parkinson’s, a number of Eliza light hats, both one and two wavelength. I’ve been musing on what they and we have been noticing. Bear in mind that each person is different, experiencing symptoms in different ways.

We have seen improvements in everyone who uses the lights daily.

The person least likely to notice any improvements is the person with Parkinson’s

Continue reading “Parkinson’s symptoms & Lights”

DIY Light Hat #3 – making holes

  1. Mark the bottom of the bucket. The larger dots around the perimeter will be ventilation holes, and the smaller dots (in the circles) to connect to a head piece inside the bucket. Eliza 3 holes 1

  2. Find a robust kitchen knife with a sharp pointed blade and start making the holes.I used to drill them, but I’ve found it is just as easy to carve the holes out with a knife.I hold the knife at right angles to the plastic and twist back and forth with pressure. The quality of the plastic of the buckets I’m using is not very good so it is very easy to split the plastic.The rotating movement reduces the splitting. But even if the plastic does split a bit, don’t worry – this is not a work of art and perfection is not the aim.Eliza 3 holes 2

You’ll need to turn the bucket over and work from the bottom as well as the top to get the holes through. Keep that knife rotating. 

If you have a very thick plastic bucket, use the drill to start the holes. You will still use a knife to adjust the size and clean up the edges. 


What you need to make an Eliza bucket light hat:

Click here. 

To come:

Instructions for making a one wavelength Eliza, a bucket red light hat are underway. They will be published as a document rather than as blog posts.

 

DIY Light Hat #2 – mark up

  1. Measure 160mm or 6.5 inches from the top of the bucket. And mark the measurement all around the bucket. You don’t need to be exact.
    Bucket first markings


  2. Mark places where you will be making holes. The first is at the top, about half way between the attachment of the handles. Only mark the holes circled below. (The other holes you will need for the two wavelength version, but not the one wavelength version.)
    Eliza 2 marking 2

3. Now mark holes lower down, on either side of the 160mm or 6.5 inch mark. You need to do these holes in two places, on opposite sides of the bucket. I do them under the handle attachments, as it helps keep me oriented. 

instruction 2 bucket 3


What you need to make an Eliza bucket light hat:

Click here. 

To come:

Instructions for making a one wavelength Eliza, a bucket red light hat are underway. They will be published as a document rather than as blog posts.

 

Have bucket, will travel…

While writing out the instructions to make light hats from buckets, I’ve been musing on the lives of the 2-wavelength light hats we have made since 2016.

What have the light hats been doing since we gave them away?

Quite a lot, it seems.

  • One went to Europe at the beginning of 2017, and floated down the Rhine, sampling the local beer.
  • Three went wandering in outback Australia. One came home but two are still out there, somewhere in the wilds of Western Australia.
  • One did a presentation to a Parkinson’s Support Group in February 2017. The participants were not impressed by the bucket’s attire but they were impressed by what its two wavelengths had been doing.
  • One is based in regional NSW but travels all over Australia, packed in a carry-on bag with socks and jocks stuffed inside the bucket next to the switch box.
  • The others are quietly working at home. They might be planning grand adventures – who knows.